The following was written and posted on the internet by The Benny Fund and I subsequently found it on PAPERBLOG and decided to post this as it was heartwarming to find it on the internet. Thank you so much Benny Fund for your support as well as for the email you sent me after reading my book. Here is a part of it :-
RE: David’s Story by Jill Sadowsky.
Thank you to my kind (virtual) friend and inspiration, Grandma Jill. I started to read Jill’s blog during the depths of depression. She blogs about mental illness, and her entries on schizophrenia started to resonate with me when I had concerns about my brother. After his suicide this last August,(2014) I reached out to Jill as a resource. She has been an endless source of inspiration and knowledge. David’s Story is a remarkable, yet heartbreaking tribute to her late son. She details her family‘s journey as well as her frustrations with the mental health system and in this, she is not alone. She tragically lost her son to suicide as we lost my brother. I read most of her book ‘David’s Story’ within days, but I delayed reading the last few chapters for months.I could not bring myself about to deal with the reality of suicide given the rawness of my feelings so did not have the courage to finish Jill’s book. I spent the last hour sobbing uncontrollably. Her book hit at my core. Jill’s persistence was and remains enviable. Her courage is admirable. Her compassion, incomparable. If you have the chance, please read David’s Story which is on SMASHWORDS OR THE AMAZON KINDLE STORE.
‘A person diagnosed with a mental illness, as well as his/her family, is usually the very last one to speak out about it due to the stigma. Mental illness is far more common than diabetes, heart disease or cancer yet is far less spoken about. It is NOT a character flaw. It doesn’t help to tell someone to get over it. But it helps to show compassion as they are struggling. Find ways to give support. Maybe it’s time to deal with it openly with the emphasis on kindness and acceptance.’
I think that loneliness is a huge challenge, for people who are physically challenged, those who suffer from CP (cerebral palsy) visually challenged people and those with mental illnesses as well as their caregivers. I have met people with impressive academic credentials who have everything going for them yet loneliness remains a huge challenge. This loneliness might affect their caregivers as well. I have met people who get great satisfaction at work, but what they miss is having a partner or a soul mate. Every single one of these people are functioning adults, are employed and many have university degrees. Yet, loneliness remains the greatest challenge that these people face. Why is it so difficult for them to find partners? Because they are different. And the general public is afraid of a person who is different. One young man told me; “I look around at my friends who are far less educated than I am, yet they are married with children. I don’t know whether I want to get married, but I do know that I don’t want to spend the rest of my life alone.”
Increase the well-being opportunities and happiness of your patient.
Have a good sense of humor.
Please reconsider keeping your professional distance and show him/her that you are human – a tiny bit of TLC won’t harm you know.
Please consider family and your patient’s good friends as team players.
It is so important to Inform your patient about any side-effects of his/her medication he/she might experience.
It will be very helpful if you make sure that your patient gets good dental care.
Help your patient fight bureaucracy as he/she is in a position of weakness at this stage.
Help fight the stigma accorded mental illness. There is a whole lot that you can do.
Last but not least, give your patient some hope. Nobody can live without hope.
You have no idea how different my life would have been if the mental health professionals I came into contact with had been more aware of the family’s feelings. I would hate anybody else to experience what my family did. Of course there are exceptions, but far too few.